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Het onvoltooide kind : op zoek naar de grenzen van pril leven
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ISBN: 9789460038655 Year: 2015 Publisher: Amsterdam Balans

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New Perspectives on Paternalism and Health Care
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ISBN: 9783319179605 9783319179612 9783319179599 9783319354736 Year: 2015 Publisher: Cham Springer International Publishing

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This work sets the stage regarding debates about paternalism and health care for years to come. The anthology is organized around four parts: i) The concept of paternalism and theoretical issues regarding the idea of anti-paternalism, ii) strategies for justifying different forms of paternalism, iii) paternalism in psychiatry and psychotherapy, iv) paternalism and public health, and v) paternalism and reproductive medicine. Medical paternalism was arguably one of the main drivers of debates in medical ethics and has led to a wide acknowledgement of the value of patient autonomy. However, more recent developments in health care, such as the increasing significance of public health measures and the commercialization of medical services, have led to new social circumstances and hence to the need to rethink issues regarding paternalism. This work provides an invaluable source for many scholars and practitioners, since it deals in new and original ways with one of the main and oldest issue in health care ethics.


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Ethical Issues in Behavioral Neuroscience
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ISBN: 9783662448663 9783662448670 9783662448656 9783662513019 Year: 2015 Publisher: Berlin, Heidelberg Springer

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Behavioral neuroscience encompasses the disciplines of neurobiology and psychology to study mechanisms of behavior. This volume provides a contemporary overview of the current state of how ethics informs behavioral neuroscience research. There is dual emphasis on ethical challenges in experimental animal approaches and in clinical and nonclinical research involving human participants.


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Mental Health in South Asia: Ethics, Resources, Programs and Legislation
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ISBN: 9789401790178 9789401790185 9789401790161 9789402400533 Year: 2015 Publisher: Dordrecht Springer Netherlands

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This book tackles the issue of mental health legislation in South Asia. The first of its kind, it addresses an issue that is necessary for protecting the rights of people with mental disorders and serves as an essential text for reinforcing mental health policy in South Asia. it is a timely addition to our global understanding of mental health and how different regions address it.Asia is by far the largest continent in the world in terms of area with population exceeding 3.5 billion and has dozens of cultures, religions, languages and ethnic groups. As a result of its highly varied political systems, Asia also spawns a wide variety of health care systems including mental health care systems, often based on historical roots and at times colonial heritages. The people who suffer from mental or neurological disorders in the continent form a vulnerable section of society and often face stigma, discrimination and marginalization in all societies, and this increases the likelihood that their human rights will be violated.


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Ethics, Law and Governance of Biobanking : National, European and International Approaches
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ISBN: 9789401795739 9789401795722 9789401795746 9789402405217 Year: 2015 Publisher: Dordrecht Springer Netherlands

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Biobank research and genomic information are changing the way we look at health and medicine. Genomics challenges our values and has always been controversial and difficult to regulate. In the future lies the promise of tailored medical treatments and pharmacogenomics but the borders between medical research and clinical practice are becoming blurred. We see sequencing platforms for research that can have diagnostic value for patients. Clinical applications and research have been kept separate, but the blurring lines challenges existing regulations and ethical frameworks.Then how do we regulate it? This book contains an overview of the existing regulatory landscape for biobank research in the Western world and some critical chapters to show how regulations and ethical frameworks are developed and work. How should international sharing work? How design an ethical informed consent? An underlying critique: the regulatory systems are becoming increasingly complex and opaque. The international community is building systems that should respond to that. According to the authors in fact, it is time to turn the ship around. Biobank researchers have a moral responsibility to look at and assess their work in relation to the bigger picture: the shared norms and values of current society. Research ethics shouldn’t only be a matter of bioethicists writing guidelines that professionals have to follow. Ethics should be practiced through discourse and regulatory frameworks need to be part of that public discourse. Ethics review should be then not merely application of bureaucracy and a burden for researchers but an arena where researchers discuss their projects, receive advice and practice their ethics skills.


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A Critical Examination of Ethics in Health Care and Biomedical Research : Voices and Visions
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ISBN: 9783319183329 9783319183336 9783319183312 9783319382517 Year: 2015 Publisher: Cham Springer International Publishing

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This book is a critical examination of certain basic issues and themes crucial to understanding how ethics currently interfaces with health care and biomedical research. Beginning with an overview of the field, it proceeds through a delineation of such key notions as trust and uncertainty, dialogue involving talk and listening, the vulnerability of the patient against the asymmetric power of the health professional, along with professional and individual responsibility. It emphasizes several themes fundamental to ethics and health care: (1) the work of ethics requires strict focus on the specific situational understanding of each involved person. (2) Moral issues, at least those intrinsic to each clinical encounter, are presented solely within the contexts of their actual occurrence; therefore, ethics must not only be practical but empirical in its approach. (3) Each particular situation is in its own way imprecise and uncertain, and the different types and dimensions of imprecision and uncertainty are critical for everyone involved. (4) Finally, medicine and health care more broadly are governed by the effort to make sense of the healer’s experiences with the patient, whose own experiences and interpretations are ingredient to what the healer seeks to understand and eventually treat. In addition to providing a way to develop ethical considerations in clinical life and research projects, the book proposes that narratives provide the finest way to state and grapple with these themes and issues, whether in classrooms or real-life situations. It concludes with a prospective analysis of newly emerging issues presented by and within the new genetics, which, together within a focus on the phenomenon of birth, leads to an clearer understanding of human life.


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Application of Systems Thinking to Health Policy & Public Health Ethics : Public Health and Private Illness
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ISBN: 9783319122038 9783319122021 9783319122045 Year: 2015 Publisher: Cham Springer International Publishing

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This book looks at health policy through the lens of public versus private: population health versus the somatic, social, or emotional experiences of a patient. Rather than presenting policy/ethics as overly technical, this book takes a novel approach of framing public and private health in terms of political philosophy, ethics, and popular examples. Each chapter ties back to the general ethics or political literature as applicable, which are not customarily parts of the current public health curriculum. The author's work on the Orgcomplexity blog has touched on this subject by systemically exploring public policy issues, and the tone of this book mimics the blog with an extension of the arguments.


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The mental mechanisms of patient adherence to long-term therapies : mind and care
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ISBN: 9783319122656 9783319122663 9783319122649 9783319385419 Year: 2015 Publisher: Cham [etc.] Springer

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The goal of this book is to describe the mechanisms of patients’ adherence to long-term therapies, whose improvement, according to the World Health Organization (WHO), would be more beneficial than any biomedical progress. For example, approximately half of the patients do not regularly follow medical prescriptions, resulting in deleterious effects on people’s health and a strong impact on health expenditure. This book describes how our beliefs, desires, and emotions intervene in our choices concerning our health, by referring to concepts developed within the framework of the philosophy of mind. In particular, it tries to explain how we can choose between an immediate pleasure and a remote reward—preserving our health and our life. We postulate that such an “intertemporal” choice can be directed by a “principle of foresight” which leads us to give priority to the future. Just like patients’ non-adherence to prescribed medications, doctors often don’t always do what they should: They are non-adherent to good practice guidelines. We propose that what was recently described as “clinical inertia” could also represent a case of myopia: From time to time doctors fail to consider the long-term interests of their patient. Both patients’ non-adherence and doctors’ clinical inertia represent major barriers to the efficiency of care. However, it is also necessary to respect patients’ autonomy. The analysis of relationship between mind and care which is provided in this book sheds new light on the nature of the therapeutic alliance between doctor and patient, solving the dilemma between the ethical principles of beneficence and autonomy.


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Libera me : over euthanasie en psychisch lijden : getuigenissen en reflecties
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ISBN: 9789492011138 Year: 2015 Publisher: Antwerpen Witsand

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Lieve Thienpont, psychiater en psychotherapeute, zoekt al vele jaren niet aflatend naar wegen om mensen met ondraaglijk en perspectiefloos lijden te helpen bij het sterven. De Euthanasiewet biedt daarbij mogelijkheden voor mensen met een psychiatrische problematiek. Vanuit een diep menselijke betrokkenheid hanteert Lieve in haar werk sleutelbegrippen als hoop, procesmatig en in verbinding. Zij laat zich daarbij met geduld en respect gidsen door de patiënt. Van onschatbare waarde zijn de getuigenissen indit boek. Veel beter dan elke theoretische beschouwing helpen zij de lezer betrokken te raken op de moeilijk te begrijpen realiteit van mensen dieondraaglijk en perspectiefloos psychisch lijden.Het is voor Lieve Thienpont van het grootste belang dat patiënten de spreekkamer verlaten met een nieuwe sprankel hoop, zij het (nog) niet op een beter leven, dan toch op een menswaardige dood&Uit een gesprek met Petra de Jong, directeur van de Nederlandse Vereniging voor een Vrijwillig Levenseinde (NVVE), blijkt dat hulpverleners in Nederland en België, ondanks de verschillen in wetgeving, voor dezelfde uitdagingen staan om elke wilsbekwame burger het waardig sterven te bieden waarop hij recht heeft. Zij zoeken naar antwoorden op de moeilijke vraag welke mogelijkheden er zijn voor mensen die een waardig levenseinde willen maar de grens van een nog heldere beslissingsbekwaamheid voorbij zijn.


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Guantanamo and Other Cases of Enforced Medical Treatment : A Biopolitical Analysis
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ISBN: 9783319226538 9783319226521 9783319226545 Year: 2015 Publisher: Cham Springer International Publishing

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This volume presents a number of controversial cases of enforced medical treatment from around the globe, providing for the first time a common, biopolitcal framework for all of them. Bringing together all these real cases guarantees that a new, more complete understanding of the topic will be within grasp for readers unacquainted with the aspects involved in these cases. On the one hand, readers interested mainly in the legal and medical dimensions of cases like those considered will benefit from the explanation of the biopolitical framework within which each case develops. On the other hand, those focusing on only one of the situations presented here will find the parallels between the cases an interesting expansion of the complexity of the problem. Despite the book's ambitious goal, for those willing to use it as supplemental material or interested in only one of the cases, the chapters can function as self-standing pieces to be read separately. This volume will be a valuable tool for both academics and professionals. Bioethicists in both the analytic and continental traditions, will find the book interesting for not only the specific concepts and issues considered, but also for its constructive bridging of the two schools of thought. In addition to philosophers, the structure of this work will also appeal to lawyers, doctors, human rights activists, and anyone concerned in the most disparate way with real-life cases of enforced medical treatment.

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